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Hi Chirley (and Greg) -- hope it's okay I'm doing a two-fer...
Chirley, I'm so so glad you're feeling better. That dehydration is awesomely serious stuff.
No news here. Last week, the hematologist discontinued the Aranesp for Bruce. And then made a pitch for Exjade. Because now Bruce is only gonna be on transfusions until we see if the copper kicks in (still waiting for results on that). After your experience, as well as watching a video on the AA/MDS site, Bruce is gonna wait.
We don't celebrate Easter or Passover either, but like you, Chirley enjoy watching others do it. And Greg -- celebrated both holidays when I was young with various parts of my family, but tonight we did nothing more festive than eat homemade mushroom soup.
It was a spectacular spring day here, howling cold wind one morning, then the wind stopped and it warmed up a lot!
Good to hear from you, Greg, do you know how your copper is doing? Your comments about Queens reminded me of some nice memories -- I had a hotel in Queens I used to stay in when traveling to Europe. I always spent a couple extra days there, get my clock reset a bit, would do some uptown touristy stuff, but always spent eating time right down the street from the hotel. Like you say, very good grub there!
Cheers, Catherine
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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