[Chirley]

Hi,

I just got my blood test results.

Good news. CBC normal except for low lymphocytes.

Now for the rest. Copper at 9 (13-25) ceruloplasmin 0.16 (0.2-0.45) Ferritin 3,000 (30-150) and liver enzymes higher than they have ever been.

I've worked out that my copper drops by around 2 a week. It would have been 3 weeks after the IV Copper when I had this blood test, so, if I add 6 to the current copper level of 9 (it was 0 when I started the copper) then 1 week of IV Copper gave me an increase of 15 umols. Going on these calculations, I would only need 2 days of IV Copper per month (I'd prefer 1 day a fortnight) and not the 5 days that my haematologist was suggesting. Maybe I could have venesections to lower the ferritin at the same time. Now I just have to persuade my doctor.

I'm trying to get hand controls for my car so I can be independant again. It's not that easy. I have to be referred to an OT at a hospital that has a Driving Assessments Unit (6 months wait) and see if I'm eligible. Even if I'm accepted onto the training program I then have to have my car modified at my own cost. Apparently there is no financial assistance available for this. Oh well, what else is money for?

Regards