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Old Thu May 5, 2011, 04:58 PM
mscrzy1 mscrzy1 is offline
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Join Date: Jan 2011
Location: California
Posts: 103
I completely understand your frustration. My counts are slowly dropping and I think that the only reason why I'm being taken seriously is because I've had AA before. Had I not, I believe that I would be in the same boat as you. I will tell you that I sort of pushed for a BMB to see if we could see if anything was going on. Now that I've had it, though, I can see why they prefer to wait on the BMB because now we have a BMB that didn't really show much. The drs. have said that a BMB taken too early may not show a thing which is exactly what happened to me. The drs. believe that it's too early to see what's going on yet. That may be the case with you. I would definitely push for regular cbc checks, though. There's no harm in checking your counts every 3-4 months and staying on top of it.
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Angie

36 yr. old, dx SAA in Jan 1996, treated with ATG in Mar. 1996, off cyclosporine Sept. 1996, last blood transfusion in Aug. 1997, slow decline in counts again November 2010, AA and current count decline thought to be caused by lupus, currently taking 400mg Plaquinil
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