Hi Julie,
Sorry to hear you've been unwell.
On the support front....have you contacted the Leukaemia Foundation. Maybe if you email Anthony he can arrange for a support person for you. When I was in hospital recently my roomie for the first week had AML and they were from the country. They had a support person from the Leukaemia Foundation helping with all the logistics.
Good luck
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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