|
How is Desferal given
Hi,
my doctor told me today that as I can't take Exjade that his preferred iron chelation will be Desferal IV.
He talked about having continuous therapy through a pump using my port. It wasn't until I got home that I realised I needed to know more.
How long would the treatment last...are we talking days, weeks or months?
and how often would the pump reservoir need to be changed/refilled, daily/weekly?
Anyone know?
I'd be grateful for any information.
Regards
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
|