Hello All,
I am brand new to this site. My mom Jane has had MDS for a few years. Transfusion dependent for the past 2 years. She was getting them every 2 months...but over the past year, it's been every month. This past month has been every 2 weeks. She has a living will, and does not want this. She also has COPD & Alzheimer's, she is 85. Her quality of life is not good..she is no longer walking. After speaking with her oncologist, we decided to put hospice in place. Her last transfusion was on May 7.
My question...how much longer does she have? What will happen to her....one ER doc told me if she didn't get the transfusion, her body would start shutting down....what does that look like?
Thanks,
Jane's daughter..Lisa