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Lisa V, it's like you've been there and done this before, you are exactly right with his HGB count - it's 9.7!
And he is (was) very active, he's more tired now. How much of that is from the disease and how much is from being a teenager, I'm not sure. I don't want him going through life with this energy level, I hope it gets better.
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Edith, mom to Eric, dx 2/11 at age 15 with SAA, began ATG/CsA 3/11, switched to Tacrolimis 8/11, off all meds 9/11 and is now considered to have bone marrow failure not otherwise specified.
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