|
Dear I love AA. My son is 15 and has SAA, although his drs are not talking transplant yet, I can only try to imagine him going thru this.
First, I want to give you a hug.
Do you have a laptop? If your friends can't visit, maybe you can Skype them? You can always post here, we'll all be happy to "talk" to you! Ask your friends/family to start saving magazines and paperback books for you. Do you have lots of pictures - maybe you could work on a scrapbook? Do you like to write? Ever heard of nanowrimo? It's where you write a 50,000 word novel in one month. It takes place in November, but you could do it when you're up there. Do you like to learn? Maybe you could take it upon yourself to learn sign language?
These are some suggestions off the top of my head, I will ask Eric if he has ideas and let you know.
You are in my thoughts and prayers.
__________________
Edith, mom to Eric, dx 2/11 at age 15 with SAA, began ATG/CsA 3/11, switched to Tacrolimis 8/11, off all meds 9/11 and is now considered to have bone marrow failure not otherwise specified.
|