Bergit-
the Campath Trial at the NIH in Bethesda, Maryland, is primarily for people who have either AA or MDS. Most have tried other treatments, but I had not. The drug is Campath, which is FDA approved for other illnesses, but not currently for AA or MDS.
It is a 10 day, 2 hr/day, infusion of the drug.
I responded within 6 months. My counts went up, (after initally going down), and so it was the Campath that ultimately made my counts go up to where I haven't had a transfusion since June 9, 2009. (just about 2 years now). so, it was about 3 months before I was transfusion independent.
You can contact Dr. Matthew Olnes at the NIH if you want more information - or have your dr. contact him. He is the lead investigator for those with MDS.
Here is his e-mail. they have extended the trial, to the best of my knowledge.
olnesmj@nhlbi.nih.gov
Hope this helps.
Lisa