Quote:
Originally Posted by Marlene
they don't always explain the terms by which they measure success or failure of a treatment.
when you're first learning about this disease and the treatment options, I have a bit of selective hearing. Either they're not clear, or I hear want I want to hear.
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OMG Marlene! I know EXACTLY what you mean! I thought it was just me being 50, and that I didn't remember what they said. Now I think they change what they say, or they clarify themselves as we go along.
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Edith, mom to Eric, dx 2/11 at age 15 with SAA, began ATG/CsA 3/11, switched to Tacrolimis 8/11, off all meds 9/11 and is now considered to have bone marrow failure not otherwise specified.
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