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Old Wed Jun 8, 2011, 02:36 PM
Lisa V Lisa V is offline
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Join Date: Aug 2006
Location: Waimanalo, Hawaii
Posts: 401
Quote:
Originally Posted by edithr View Post

I agree the body adapts with what it has. So how did Ken feel during all of this?
That's the thing, Edith, he felt fine through all of it. When he was first diagnosed his Hgb was 6.4 but he didn't even feel tired. He's an active guy (we have a plant nursery/farm, so lots of physical labor), and it hadn't slowed him down at all. The only reason we even caught it is because he started having retinal hemorrhaging which was causing blurred vision. We went into the ER for that, and they discovered his Plts were only 8k too. He'd been bruising a lot, but since he was building a rock wall he didn't think anything of it. The ER doctor couldn't believe he was even walking around with counts like that, but when I talked to the hem/onc later, he said that it had probably been developing over the course of several months to a year, and that that subtle decline had allowed his body to adjust somewhat, whereas if his Hgb had dropped that low all of a sudden, he probably wouldn't be able to stand up!

The only thing that made him feel sick were the side effects from the meds (plus getting C. diff. in the hospital).
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-Lisa, husband Ken age 60 dx SAA 7/04, dx hypo MDS 1/06 w/finding of trisomy 8; 2 ATGs, partial remission, still using cyclosporine
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