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Old Thu Jun 9, 2011, 08:19 PM
mausmish mausmish is offline
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Join Date: Mar 2010
Location: Maryland
Posts: 453
Depending on how much the highest dose was, that sounds like a fast taper from March to April. Also, when the doctor tried to get my mother from 10mg to 5mg, they took her down 1-2mg every three weeks. I can see a big difference in her when she gets as low as 7mg - terrible fatigue. She's never been able to go lower than that due to her illness and really functions best at 10mg. I guess my point is that even as little as 1-3mg difference can have a big effect. Perhaps a taper from 6 to 1 gradually would have done better (I honestly don't know, just guessing). You should read Flamingo Jim's blog (http://jimschmitz.wordpress.com/#!/page/1). He is currently undergoing post transplant taper off prednisone that he had to take for liver gvhd.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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