Quote:
Originally Posted by evansmom
Good to know the transplant team is finally stepping up...we could have predicted this further drop but they don't seem to think further ahead than their own noses.
I would go with the prednisone and protective meds as they have suggested. You could potentially be at a critical time where you are losing the graft and the window of opportunity to rescue could be getting very narrow. I wouldn't worry about the meds skewing the BMB results.
If this is an antibody issue, the prednisone should help that too.
At least they are taking this more seriously now and doing something. I do not know what an SSA-RO antibody is so will look into that now.
Hang in there,
Nicole
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While getting transfused I got my labs...no printer so wrote them down...
6/13---6/10---6/8
WBC 4.8 5.3 8.1
HGB 12.7 12.9 14.0
MCV 102.3 103.4 102.3
PLT 17 49 65
ANC 1.65 1.73 2.43
LYMPHS 2.68 2.93 4.91
Anyone else notice a trend?
From 6/10:
From my type and cross I for the first time EVER had antibodies show up:
"Antibody reacts with glycoprotein IIb/IIIa, glycoprotein Ib/Ix, glycoprotein Ia/IIa"
Prothrombin 9.4 (9.5-13.8)
INR 0.8 (0.8-1.2)
APTT 25 (28-38)
Creatine Kinase 27 (38-176)
SS-A/ROAb, IgG, S >8.0 (<1.0)
SS-B/La Ab, IgG, S 0.3 (<1.0)
RNP Ab, IgG, S <0.2 (<1.0)
Sm Ab, IgG, S <0.2 (<1.0)
Jo 1 Ab, IgG, S <0.2 (<1.0)
Sc1 70 Ab, IgG, S (Although I can't read my hand writing so may be different) <2.0 (<1.0)
So I got the transfusion. But by the time I showed up for plts I had petechiae all over and multiple more purple bruises. Never in my career of low plts have I ever looked like that before. So I am sure they were even lower...
After that I picked up the Prednisone, etc. The doctors office stressed the importance of starting STAT. So I already took 60 mg of Prednisone (daily dose). Also prescribed what I wrote below.
So I guess it's a wait and see game right now...will reply to other posts in new messages...
Thanks again to everyone...