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Low counts
Hi cheri,
Hope that you didn't have any problems with the BMB!
Dr Alan List is a very wellknown expert - very good if your dr can contact him.
You know Exjade can give low WBCs and platelets though that is not common - I was never able to take more than 500 mg Exjade/day due to low WBCs.
Only about 25% of the patients without the 5q- chromosome aberration respond to Revlimid but some patients are responding during many years. Look ar Kirby Stones personal profile. He has a wonderful dr who never gives in.
May 2010 I received 2 units of PRBCs every week, my dysfunctional platelets were 22 and I took Neupogen 2 inj/week for my low WBCs. My ferritin was 5600 though I had Desferal and a low dose of Exjade. Then I accepted Thalidomide. I have not got any txs since Sept 2010. My platelets are about 100. The ferritin level is 1000. I still need Neupogen 2 inj/week (since neutropenic fever 2007). I can only hope that Thalidomide will continue to work for me.
Kind regards
Birgitta-A
Thalidomide รก 50 mg 4 caps/week, Prednisone 5 mg/day and Neupogen 2 inj/week
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