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Hi there,
Glad to read you are doing so well! Congratulations on reaching Day+100, that really is something to celebrate! When my son had his BMT for AA, he needed night time IV hydration for around four months. He was discharged home around Day+36 and continued on the IV until around Day+112. In that IV bag each night, I had to add a very large dose of magnesium as his level was very low. After the hydration was stopped, Evan had to continue on oral Mg for another few months after that. Fortunately, he tolerated the Mg well without the diarrhea that is often seen with the high doses.
Cyclosporin and the sister drug tacrolimus list low Mg as a side effect and that holds true for many people. Once the drug is tapered out, the Mg recovers with normal dietary intake.
Hope this helps.
Keep well,
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Nicole, mom to Evan (20); diagnosed SAA November 2007, hATG mid-November 2007, no response after 6 months, unrelated 9/10 BMT June 2008, no GVH, health completely restored thanks to our beloved donor Bryan from Tennessee.
www.caringbridge.org/visit/evanmacneil
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