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Thanks for the suggestions, Neil. Have you heard of other bone marrow biopsies being difficult to obtain? The Dr. said he had never had this kind of trouble and the only thing that would be different next time is that he'd go deeper. More novacaine was injected on the second attempt but it was still painful. And as we joke, my daughter isn't one to suffer in silence. What other medications do you see used for these procedures - Vicodin or Xanax come to mind? I'm not sure she would want to take them, but if something could help her it might help the Dr., too, to not be rushed or nervous. (Which he seemed last time - esp. when her friend who went for support became nauseous.) Maybe I'll go out for the next one. I'm thinking it'll probably wait until the next set of blood tests in 3 months.
About the second opinion, I guess we'll wait and see what Dr. Boxer comes up with after this last round of blood tests before pursuing. He said he would "talk it over with his Mayo friend." I don't know if that's a full-blown consultation or what. He wasn't defensive or uncomfortable at all when we asked about contacting other specialists.
About the physical activity - Dr. Boxer didn't caution about anything. Online it looks like problem bleeding can occur when platelets reach the 15-30 range. We need to ask at what point action would be needed if they continue to drop. Is that something with which you have experience?
Thank you so much for this forum. Although the Dr. is accessible and answers our questions, it's so nice to be able to talk to others with experience.
Gayle
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