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Good morning Bergit.
I'm 55 year old female.
Perhaps, haematologists are so focused on getting the CBC in the black that they just don't see the whole picture.
I asked my haematologist a while ago what treatment, if any, he was considering for my increased ferritin/liver dysfunction. He said he had "taken his eye off the ball on that problem and must deal with it some time". He seems to have forgotten about it again. I don't think I should have to nag to get some treatment.
I think middle aged/older women become invisible. Nobody truly sees us any more.
Regards
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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