Consideration #1
I just had all of the pretests, (last week) that are only good for 2 weeks....
The idea of postponing will most likely not appeal to the powers that be, as I think all concerned are very excited to get started and move forward with this study. I am the face of Phase II! Although one more day may not make a difference, but starting something on a Thursday leaves stuff looming on a weekend where there is just a skeleton crew.
Consideration #2
It is to my best advantage to start when I'm better, not worse, I would assume....to the best of my knowledge, this treatment should not have any adverse effects....... unless it kills me...(oops) I think it's the type of thing that will either cause a change or do nothing--no in betweens.
While I would HOPE those in charge of the study would tell me if they saw signs indicating that any bone marrow improvement, would they risk losing their prime specimen, at the 11th hour? And it's not as though my numbers have jumped to such a degree that it would indicate a spontaneous remission. I still look completely normal and nobody can believed I am sick.
At the end of the day, all I can do is leave it up to God. I have gotten this far--the prayers I have recieved--divine intervention is the only explantion. I have outlived many in my position. Maybe all that I have gone through has led me here to try this new drug, not only for me, but for all of the others behind me........
I will write more from the hospital--
