Quote:
Originally Posted by Janice M.
Hi Greg,
Since my MDS diagnosis in May 2011 and the discovery of Marrowforrums, I check this site numerous times daily. I really appreciate all the knowledge and personal insights based on experiences and I feel that I know so many of you and I want to see how many of you are doing. Greg, I am disappointed to hear that your counts are down, and I am hopefully that your BMB is "nasties" free! Please keep us up todate.
One quick question, how does AA progress into MDS?
Take Care,
Janice
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Hey Janice!
Thanks for the good thoughts.
You know, typical of the human being, since being diagnosed with MDS, I have focused on MDS and not paid nearly as much attention to AA, despite the fact that some of my best buds on marrowforums are AA folks.
Consequently, I don't know the answer to that question, though I would love to understand it better.
My impression is that, in the space that you occupy, with your hypocellular marrow, it can be a bit tricky to differentiate AA from MDS. So "progression" from one to the other may be, I'll bet, not so much a change in condition as a change in diagnosis.
But that's a guess, and I hope that Hopeful, Lisa V, or one of our AA buds will weigh in on that subject. In fact, maybe we can post this question as a new thread over in the AA forum and get folks to talk it over. I'll do that after I finish this.
I do think it's an important question, particularly for you. Because the therapies that seem like a good idea for MDS are not always a good idea for AA -- Campath as a frontline therapy being one example: nice results in younger folks with MDS; lousy results as a frontline therapy for AA.
Take Care!
Greg