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Hi Neil
Thanks for that.Looks like i've got a bit of a journey and plenty to learn! Getting a lot of info from this forum.
Do you know what deleted chromosome 13q means?
Thanks Paul
Hello Evansmom
Hope you and your family are well.Thanks for the feedback,its just what i am looking for.
I believe horse ATG has been stopped in England at present.I to thought it strange to stop Cyclosporin altogether(0n 50mg twice a day.don't now if this is high dosage)
consultant said there were no alternatives.I wondered if it could be serum sickness from ATG?Which i finished 5 weeks ago.I was getting used to the tremors,it seems to be the only exercise i am getting!!!
Back to hospital Monday so i will be asking my Consultant a few more questions
Thanks for the tips.Paul
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paul 46 yrs old, diagnosed hypolastic/aplastic anaemia with possible hypoplastic mds june 2011: pnh 2%, clonal 13q adnormality without blasts. ATG treatment july 2011. stopped ciclosporin aug 2011 after 2wks.
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