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Hey Freedom!
Thanks for the info. Down here south of the border, as well, Revlimid hasn't been approved for us non-5q minus folks.
So, if I decide on Revlimid, I'll either have to sweet-talk my insurance company or find a clinical trial. I might go the latter route in any case, just to help build up the dataset needed to see whether it's worthwhile for non-5q- folks.
I appreciate the info on platelet impacts. I've picked up from folks on marrowforums that the reaction to very low platelets can be highly variable person to person.
Take care!
Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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