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Arieschris,
I am 37 years old, so very close in age to you. If your bmbs are coming back normal and you just have low counts, I am not sure how you can be diagnosed with MDS. MDS requires at least 10% of either white, red, or platelet lines to be dysplastic or abnormal in formation.
It sounds like a trip to a specialist is in order here.
To answer the question about watch and wait, I have been in a watch and wait mode since July 2010. My counts have been very stable with red and whites in the normal range, platelets hanging out at around 25k to 35k, but the amount of dysplasia does seem to be getting more pronounced in all 3 lines over time.
With MDS, many of the treatment decisions are very personal and guided by either best practice or best belief between the doctor and patient, so each person's treatment beginning date tends to vary from person to person, doctor to doctor.
Your visit to Stanford should be very instructive.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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