Hi Layla,
My husband is in a clinical trial for low to intermediate risk MDS at NIH in Bethesda, Md.
He had been transfusion dependent for red cells and platelets since 1/09. He started taking Promacta in March. His platelets are still low - in the 20,000 to 30,000 range but well above where he would need a transfusion. His last platelet transfusion was July 27, 2011 and that due to his needing a procedure rather than low platelets. Before that it had been 8 weeks since his last needed platelet transfusion.
You can read more about his experience with Promacta under "Clinical Trials".
If you have any questions you would like to ask me please feel free to contact me.
shcalvert3@aol.com
Best wishes,
Sally