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Hi Catherine, I find it incredible that you have to insist on sedation. The clinic/doctor I go to won't do a BMB without sedation even if you ask for just local anesthetic. He/they say that hematology/oncology patients already suffer more than their fair share of needles and sharp things so why should they have pain with BMBs if it's totally unnecessary.
The clinic has a protocol of 5mgs IV Midazolam. This works wonderfully. While you're not exactly under anesthetic, just sleeping, there is no memory of the procedure. My doctor also insisted I have Midazolam when I had my lumbar puncture, apparently he had to have a number of attempts so I am grateful I was sedated.
BTW I'm glad Bruce is advocating for himself even if it means a long drive.
Regards
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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