The AA&MDSIF has a
suggested list of questions to ask doctors. It's mostly questions about treatment but there are also some preliminary questions you might want to ask: What's my diagnosis, why, and how sure are you? What do my symptoms and my specific test results tell us? What's actually going on in my body? What other tests do I need and why? Can I live with with disease or do I need treatment? What's the whole range of care and treatment approaches? What should I be doing day-to-day (e.g., diet or lifestyle changes) to get better or not get worse? What do I need to learn to let me be a partner in my own medical care and what sources of information are most reliable?
Keep in mind that we at Marrowforums are patients and family members who have learned from our personal experiences so we can offer advice as your peers while the doctors are the real experts on the diseases and treatments.