Thread: Very Severe AA
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Old Thu Oct 27, 2011, 04:56 PM
Greg H Greg H is offline
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Join Date: Sep 2010
Location: North Carolina
Posts: 660
Howdy San Antonio!

There's an outfit called the Center for International Blood and Marrow Transplant Research that collects and publishes data on this sort of thing.

Here's their most recent slide on survival after transplant for AA:

[IMG]
CIBMTR Survival AA by hankins.greg, on Flickr[/IMG]

You can go download their whole slide set here.

The AA&MDS folks had a session on transplant for AA With Dr. Joachim Deeg of the Fred Hutchinson Cancer Center out in Seattle. He shares some data that you would probably find useful. You'll find that one here.

There's another one on down the list on that page by Dr. Matt Kalaycio of the Cleveland Clinic that I always recommend to folks. It's about transplant for MDS, but Kalaycio is a real straight shooter on the risks of transplant.

There are also some good presentations on transplant in this set.

Good luck! Keep asking question here on marrowforums. There are plenty of folks around with AA and plenty who've had transplants for AA at a variety of ages.

Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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