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Hey Sherry!
I had rigors with Campath (a different immunosuppressant drug). Everyone is different and it sounds like your husband may have more health issues than me. But, for me, the rigors looked a lot worse than they were, and so were harder on my wife than on me.
I think they gave me demerol to control the shakes. I think the body uses a lot of energy when its shaking with the rigors, so I fell asleep once they subsided. I was also very cold while shaking and found that warm blankets were very comforting.
Good luck to you and your husband.
Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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