Neil Cuadra:
Thank you for your response.
If the diagnosis is confirmed, some of his features make his MDS even rarer than it normally is for pediatrics.
I'm not even sure what MDS expertise means with pediatrics because of its rarity. Is 1 case expertise? 3? 10?
His sibling is not at all a close HLA match. We do have his own cord blood, but one doctor says it can't be used and another says only possibly as a very last resort. But thank God we're not at the point yet that he requires a transplant. Right now just trying to figure out exactly what the problem is and where to go from here.
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