[amkjud]

I posted earlier about my 7-year-old son who has been worked up for suspected MDS. One thing I can't wrap my head around is that he doesn't seem to fit the standard (WHO, FAB) classifications, but doctors insist on pursuing it as possible MDS. Has anyone out there been diagnosed with MDS without WHO/FAB criteria?

Also, are there any younger MDS patients out there with essential hypertenion and/or polycythemia (high hemoglobin) and/or a deletion of chromosome 7q31? I ask specifically about younger patients because the first and third don't generally appear in younger patients (in my understanding).

Also, has anyone experienced an chromosomal abnormality on a bone marrow biopsy that then disappeared (temporarily or permanently)?

I am interested in personal responses as well as any references to the literature. Thank you!