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2nd opinion
Hi amkjud,
If you havn't already done so it might be good to get a 2nd opinion. Dr. Lewis Silverman in NYC is a leading MDS researcher and would have excellent resources to review your son's BMB slides or do another BMB.
MDS in someone so young is rare, hope you can get some definite answers.
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Kirby71, RAEB2 dx 2/04, Thalidomide 30 mo, Revlimid 18 mo, No resp Vidaza
6/09 2nd Thalid use, Promacta, Lowdose Dacogen added 10/09 at 40% blasts. 5/11 BMB-blasts 8%.
2/11 2nd Revl restart=good resp, Platelets drop 6/11, 3rd Thalid,+Nplate+Dacogen. 7/12 Cnts stable for 10 mo.
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