I've also seen the 100/year number, as well as 4 per million.
I assume you saw the beginning of this thread, but my son is 7 years old. suspected MDS, whatever that means. he is being monitored and is not a candidate yet for transplant.
I don't know yet much about facilities where I live in New York (looking into it now), much less Phoenix. Sorry.
A number of other people have linked to some pertinent info on MDS in kids over the last 2 days for me.
Please report back here any info you find out.
Good luck.
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