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Old Mon Nov 21, 2011, 10:38 PM
misscakes misscakes is offline
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Join Date: Nov 2011
Location: Savannah, Georgia
Posts: 17
Exclamation Aplastic Anemia/MDS?

I'm new here So I'll just jump right in.

My doctor noticed some issues in a standard blood count earlier this year so he referred me to a hematologist. I was pregnant at the time. The doctor was concerned with my platelet counts which continued to drop. We tried steroids, b12 injections, iron infusions, to no avail. In May I got my first bone marrow biopsy. It showed 20-30% cellularity. In June I had a healthy baby girl along with 2 platelets transfusions bringing me to a total of 3 so far. My platelets continued to be crappy after her birth. In the past couple months, the rest of the blood counts on the cbc started to go down as well. My doctor then referred me to Emory in Atlanta for a second opinion...and a second bone marrow biopsy. That was October. This one showed a cellularity of 10%. My doctor and I discussed a bone marrow transplant (as well as with the specialist at Emory), but I was told that they didnt want to do one yet because I had small children and there wouldnt be anyone to take care of them while I was recovering (which is completely untrue!). So both my doctor here and the one in Atlanta told me that we are going to wait until my condition worsens to proceed with treatment. Just since my biopsy October 10th, my platelets have dropped 15 and are now at 23. Is it normal to wait until something gets worse when it's already this bad or should I seek other opinions? My bones hurt constantly and I'm too tired to do much. Can it get much worse without being an emergency?
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