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Hi All,
Just want to say, my status mirrors Scott's as does my philosophy.
My one question is: with a community hemotologist and a transplant dr., should I still try and locate an MDS specialist? Does this dr. need to be associated with the hospital I will receive the the sct at?
thanks for all the support and information.
Donna
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
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