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Another Update
Today wasn't quite as good as yesterday, but it was still quite an improvement over the past month. John's CBC showed his Hgb was 11.3, hematocrit 33.6, and platelets 24,000. He was able to get around, do a little shopping, pick up the mail, and climb the stairs without assistance. I hope we can use 10-11 as his new transfusion threshold. His primary insurance is BC/BS through my work policy; Medicare is secondary. So far, his transfusions have not been questioned, except that the hospital somehow cannot link his account to our blood bank membership. So we have to call every time we get a bill for blood products and explain that we should not be billed. Sigh...
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Alice, wife of John, diagnosed MDS RAEB-1 5/10. Tried Vidaza, ON 01910.Na (at NIH), & Vidaza + Revlimid with no effect. Progressed to RAEB-2. Supportive care only from 9/2011 until death 1/26/12.
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