I second the check for celiacs. I would check on his thyroid, too, and even lupus. Maybe your next dr. visit should be a rheumatologist. They deal with autoimmune diseases. His being incredibly fatigued, but no explanation from his bloodwork is what leads me to this thought. There are many autoimmune diseases out there that will cause extreme fatigue. Unusual hair loss can also be a thyroid issue many times. All of these things a rheumatologist can help discover. I wish you the best. It's so hard to be a parent and feel helpless when it comes to making our babies feel better. 
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Angie
36 yr. old, dx SAA in Jan 1996, treated with ATG in Mar. 1996, off cyclosporine Sept. 1996, last blood transfusion in Aug. 1997, slow decline in counts again November 2010, AA and current count decline thought to be caused by lupus, currently taking 400mg Plaquinil
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