Marlene,
Thanks for those tips. I know what you mean about waste and our health care system. One of the factors in the "pro" column for desferal is that I understand it's much cheaper than Exjade. Of course, I won't be paying for it, either. But we're never going to get health care expense growth under control if everyone doesn't pitch in a bit. I found
a neat Thalassemia site on the web that discusses various pumps and needles.
Birgitta,
It does seem like Desferal would be much easier with a port. I have seen the lemon pump, which I understand works with no batteries.
Thanks to you both,
Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at
www.greghankins.com