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Hey Catherine!
I'm not sure if they tested copper when I was up at NIH. I'm going to order the full set of labs, so I'll be able to find out in a week or so (or maybe sooner when Dr. Dumitriu calls with my cytogenetics report). If they didn't test it, I'll get my local doc to do so. I'll have to check my noted, but I think I've been doing the higher dose of 8mg of copper per day for about six months now. One would think that should be enough time to show some improvement.
I've only just gotten back on the wheatgrass, so it's too early to tell. I'll have ferritin tested locally in a couple of months, when we're sure the Danazol isn't messing with my liver. That would be the point to make a decision about chelation with Exjade or Desferal. I'm hoping those labs will show enough progress that I can stick to the wheatgrass alone, instead of some expensive drug. But we'll have to see.
Take care!
Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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