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Old Sun Dec 18, 2011, 11:39 PM
mscrzy1 mscrzy1 is offline
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Join Date: Jan 2011
Location: California
Posts: 103
Was your husband having major side effects from the cyclosporin? Evansmom is right. Your husband should have had continual dosage of cyclosporin up through March at the earliest, and many AA patients continue cyclosporin even longer than that. ATG doesn't work alone and the combo takes a while to take effect. You may want to ask your husband's medical team to call the AA experts at NIH to verify their treatment plan. If his drs. refuse or hem-haw your suggestion, you may want to be searching for another medical team.
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Angie

36 yr. old, dx SAA in Jan 1996, treated with ATG in Mar. 1996, off cyclosporine Sept. 1996, last blood transfusion in Aug. 1997, slow decline in counts again November 2010, AA and current count decline thought to be caused by lupus, currently taking 400mg Plaquinil
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