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HI Bill,
Indeed the Neupogen is helping with WBC. Our neutrophil count went to 0.1 after ATG. Stayed there for about 3 weeks. All of sudden, it jumped to 0.2 to 0.4 to 0.7. Today, it read 1.5! Her WBC count is 5.7.
Our platelet went down to 1 during ATG. Post ATG, it stayed at 2. From a week ago, it went to 3. Today it was 4. Doctor says they are all the same number unless it goes to at least teens, but we are thinking it's a positive trend!
I know it takes months before we could be transfusion independent... but we can't seem to ignore these numbers... it's a real tough battle.
Also, our doctor is saying transplant is needed for her... why? why can't we stay with ATG and see if it helps? Is ti becasue my wife is still considered young? She's 35 but looks like a college kid because she's so petite.
Good luck to all! We will prevail!
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