Met with the GI Dr and he said try Benefiber. Any testing will wait until things calm down. Not a good candidate for a colonoscopy, with a WBC of 1!The pains have greatly subsided, although the issues aren't completely resolved...
My Ferratin level was 6447 as of yesterday. That means it only dropped only 400-500 points after being on the Exjade, which I obviously can't tolerate for long stretches. Now what? Wheatgrass--can it give me a realistic reduction? How much to take...I still have some in the freezer--any negatives or contraindications with other meds?
Hopefully, Revlimid works and I don't need more transfusions....how long does it take for excess iron to clear on its own?
How soon before this high ferratin # creates problems?
I'm not sure I even want to know...but any warning signs would be good to know I guess....
Feel free to comment and thanks as always!