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Hi, yes that Vidaza can cause major constipation. My only suggestion is lactulose syrup every day whether he is constipated or not.
Sorry he's too breathless to walk, this comes with the disease. Maybe they should increase the cut off point for transfusion. Instead of transfusing at say 85 maybe they should transfuse at 95 if you see what I mean.
Regards
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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