Quote:
Originally Posted by Greg H
Ric,
Very interesting that you are tracking this. I'm going to backtrack my data and see if I can pull anything out of it. I haven't recorded all the data in a spreadsheet, but I use my iPhone to photograph every unit of blood I receive, so I should be able to pull the photos and create a spreadsheet.
What conclusions do you draw from your data?
Take care!
Greg
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My conclusions are personal to me; however, I will say that fresher IS better; using Exjade is necessary to keep increases in ferritin levels under control but also watching out for the undesireable side effect of raising Creatinine levels (no matter what Novartis claims); and keeping track of PRBC donation dates and infused volumes is still a good idea.
And truly greatful THANKS to people who donate this life-giving gift to us with MDS who are in the battle to survive as long as we can!!!
__________________
Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%
)
47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).