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Hi Bill.
It's good to hear that your MDS has at least been stable, although I'm sure you'd like to see more improvement. I hope you have been able to manage any side effects from the drugs you are taking.
Which other therapies you and your doctors might consider depends on a number of factors, including these: How often have you needed transfusions? What is the blast (immature white blood cell) count in your blood and in your bone marrow? Do you have the 5q- syndrome as found in the results of your bone marrow biopsies? Is your MDS considered low-risk, intermediate-1 or intermediate-2 risk, or high-risk? Are you generally healthy other than the MDS? And what age group are you in?
If you consider a transplant or mini-transplant to be one of your choices, the availability of a donor typically depends on how many siblings you have, your ethniticy, and (unfortunately) just plain luck.
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