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Sorry to hear this, Lori. I hope you can ride it out.
CMV can give you symptoms like joint pain, fatigue, and diarrhea, often for a few weeks. Doctors probably don't worry much about those types of symptoms but they have to be careful that the infection doesn't spread to any organs.
Not everyone has this virus, at least in the United States. Approximately two thirds of the people in a U.S. city, on average, are CMV positive, while the other one third are CMV negative.
During a transplant, a CMV negative patient is at high risk of CMV infection if the donor is CMV positive. Ganciclovir is often given during a transplant to try to prevent this, and it may also be given for patients who come down with a CMV infection later. As you noted, being immunocompromised puts you at higher risk of CMV infection.
Good luck getting past this bump in the road.
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