|
Hi Greg,
Oh boy, yes, use of iron chelators is very controversial. Out of Bruce's 3 hematologists he's consulted, 2 were agin Exjade, and 1 was for it (the local doc). The local hematologist finally wore Bruce down. Bruce so far has had minimal side effects. He is currently at 1000 mg/day. And he is able to go 5 weeks without transfusion, which is an improvement by a week of where he was earlier. We don't know if that has been affected by the gluten free diet (local family doc thinks that will improve the liver function), or the Exjade.
Going on chelators is a very personal decision. I know this has not been an easy one for you. And I certainly hope your cost for the medication is not that high. That number sounds closer to what we were told the pre-insurance costs would be for Bruce. Unfortunately, every insurance company and plan handles things differently.
Thanks for the update. I always look forward to your posts.
__________________
Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
|