Hi all, sorry to muddy waters with pancytopenia, just means v. low on all blood counts. Still sticking myself with needles and still having pump 5 days on and two days off for excess iron. Spoke to docs about feeling and being so sick so they have halved dose to 2g. There are bruises/sore patches involved in keeping the needle in so long but sleeping with the pump is not a problem. Hoodies are good because you can stick the pump in the pocket.
![Smile](images/smilies/smile.gif)
For me ciclosporin 250mg per day does not keep my blood up and therefore transfusions are necessary, it also means I feel more normal because hgb drops quickly below 8 and then I lose the plot big time
![Stick Out Tongue](images/smilies/tongue.gif)
Had not heard anyone else complain about gi effects and headaches associated with desferrioxamine, so thought I must be having allergic reaction. It does make my tongue swell, so when I am chewing on my tongue at night I know its time to take the pump out
![Big Grin](images/smilies/biggrin.gif)
Hospital v good and let me run my own regime, i.e. I have sharps and kit at home and put sub q in on my own now which helps with the old empowerment. I am settled into doing the pump thing now and apart from minor infections I am glad I persevered. Best wishes to all, still vertical and still got the smile. Berry.