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My hematologist came in a couple of hours ago and told me that my counts have crashed despite the copper treatments I've been having for the last week. He said he thinks the MDS has reared it's ugly head again.
He is going away for a week and another doctor will be looking after me but I need another BMB and possibly another lumbar puncture sometime soon.
Personally, I think they have done the test on someone else and not me. I was supposed to have had that blood test taken out of my port line at 4.30 this morning but I have no memory of it a all. Admittedly, I was heavily drugged, so maybe they did it and I didn't realize.
Regards
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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