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Old Fri Mar 23, 2012, 04:51 PM
wpeche wpeche is offline
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Join Date: Feb 2012
Location: san antonio tx
Posts: 3
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Hi All

thanks for your replies. MD anderson did a very thorough work up - and my chromosomal studies were not too bad. They are bewildered by the hemolysis more than anything else. So my new protocol is Prednisone oral 50 per day X 1 wk, then tapering down 10 mg per week. They debated about Vidaza but decided on weekly rituxan X 4 weeks then a break, then 4 more weekly rituxan infusions, and possible splenectomy in another month or so. I really hate the high dose oral pred, I now have very high blood sugars and a good deal of insomnia - but my Hgb is now stable at 10.4 (for three weeks and I don't miss the transfusions) and WBC are 7,000 up from 400.

I return to MD anderson on April 13.

This is quite a journey - grateful to find the forum and all of your expertise and support. I am trying to make it to the brunch this Sunday -

thanks again, Bill
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Bill, diagnosed 1/11 with MDS - refractory case- numerous transfusions, cytoxan, rituxan, oral prednisone, IVIG, neupagen, md anderson consult scheduled 2/9/12
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