Wilmasdaughter, you are right, MDS affects every one differently. You feel great one day and miserable the next.It is avery strange condition. All I or anyone can say, is give your Mother all the love that you can. I know that it's hard to lose a loved one, my Mother, Father and Sister are gone, I miss them every day that goes by, so love her and care for her while you have her. I don't know why MDS was put on this earth, maybe so we would realize how lucky we have been to have our loved ones. I know it's a lousy condition, we can only be happy for the good days, and hope the bad ones don't last. That's all I can say to you, love her and try to keep her happy and comfortable as much as you can.
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 82  yr. old male. Diagnosed in 2003. Started Blood infusion 1/5/2004, average of 2 units every 2 weeks. Inject Procrit weekly 40,000 ML. I have had 344 units of PRC . E Mail leojean@comcast.net
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