Thread: New to forum - What comes next
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Old Wed Mar 28, 2012, 05:49 PM
usaf1125 usaf1125 is offline
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Join Date: Dec 2007
Location: Stoughton, MA
Posts: 66
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Hi, MyDad
Welcome to the Forum, MDS is a strange condition, it affects every one differently. The major effect of the transfusions is iron overload, which is not to good by itself. I have had 288 units of blood since July of 2003, with no problems. I get tired very easily, and my legs hurt quite a bit, walking is not easy. My Doctor specializes in Hematology and Oncology, that is the key , you must have confidence in your doctor. Best of luck, keep positive don't let MDS rule your life. My Wife had breast cancer 33 years ago, it came back, May 2011. She's doing great, you will also, fight, fight , fight.
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82 yr. old male. Diagnosed in 2003. Started Blood infusion 1/5/2004, average of 2 units every 2 weeks. Inject Procrit weekly 40,000 ML. I have had 344 units of PRC. E Mail leojean@comcast.net
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